TAB: Temperament and personality
| Time point | T1 Within 4 weeks of diagnosis/ admission/ surgery |
T2 4 months after diagnosis/ admission/ surgery |
T3 7 months after diagnosis/ admission/ surgery |
T4 19 months after diagnosis/ admission/ surgery |
|---|---|---|---|---|
| Reported by | Parent | Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
| Year | 2010 – 2012 | 2011 – 2012 | 2011 – 2013 | 2012 – 2014 |
| Temperament | P:STAI-AD P | |||
| Emotional functioning | P:PAT2.0 P C Si | P:PAT2.0 P C Si P:BITSEA P:PedsQL-4.0 C:PedsQL-4.0 C P:TAPQOL |
P:PAT2.0 P C Si P:BITSEA P:PedsQL-4.0 C:PedsQL-4.0 C P:TAPQOL |
P:PAT2.0 P C Si P:BITSEA P:PedsQL-4.0 C:PedsQL-4.0 C P:TAPQOL |
| Time point | T1 | T2 | T3 | T4 |
|---|---|---|---|---|
| Trial phase | Screening (0-4 weeks post admission) |
Pre-intervention (4-12 months post admission) |
Post-intervention (2 months after T2) |
6 month follow-up (6 months after T3) |
| Year | 2014 – 2016 | 2014 – 2017 | 2014 – 2017 | 2014 – 2017 |
| Emotional functioning | P:BASC-2 P:BITSEA P:PedsQL-4.0 |
P:BASC-2 P:BITSEA P:PedsQL-4.0 |
P:BASC-2 P:BITSEA P:PedsQL-4.0 |
|
| Beliefs and values | P:VQ P | P:VQ P | P:VQ P |
Featured measurements
BASC-2: Behavior Assessment System for Children -Second EditionBITSEA: Brief Infant Toddler Social Emotional Assessment
PAT2.0: Psychosocial Assesment Tool - version 2.0
PedsQL: Pediatric Quality of Life Inventory (all modules)
STAI-AD: State-Trait Anxiety Inventory for Adults
TAPQOL: TNO-AZL Preschool Children Quality of Life
VQ: Valuing Questionnaire
Notes
Age appropriate PedsQL modules were used.
PedsQL-4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales.
Cohort:
The BITSEA was used with parents of children aged 12 – 24 months only.
For measures of parent-reported child quality of life (PedsQL and TAPQOL), TAPQOL for children aged 0 – 2 years and PedsQL for children aged 2+ years were used.
RCT:
Age appropriate measures of child adjustment (BITSEA or BASC-2) were used.
Legend
| A | = Administration report abstraction |
| C | = Index child report (reporting on others) |
| L | = Linkage (to other databases) |
| M | = Medical records data abstraction |
| O | = Observation/direct assessment |
| N | = Nurse report |
| P | = Parent/primary caregiver report |
| Pe | = Peer report |
| S | = Self report |
| T | = Teacher report |
| X | = Undefined |
| X BF | = Pertaining to biological father |
| X BM | = Pertaining to biological mother |
| X C | = Pertaining to index child |
| X F | = Pertaining to father |
| X Fam | = Pertaining to family |
| X G | = Pertaining to grandparent(s) |
| X M | = Pertaining to mother |
| X P | = Pertaining to parent(s) |
| X Pa | = Pertaining to partner |
| X Pe | = Pertaining to peers |
| X Pr | = Pertaining to primary caregiver |
| X Si | = Pertaining to sibling(s) |