Time point T1
Within 4 weeks of
diagnosis/ admission/
surgery
T2
4 months after
diagnosis/ admission/
surgery
T3
7 months after
diagnosis/ admission/
surgery
T4
19 months after
diagnosis/ admission/
surgery
Reported by Parent Parent
Child (7 – 18 years)
Parent
Child (7 – 18 years)
Parent
Child (7 – 18 years)
Year 2010 – 2012 2011 – 2012 2011 – 2013 2012 – 2014
No data
Time point T1 T2 T3 T4
Trial phase Screening
(0-4 weeks
post admission)
Pre-intervention
(4-12 months
post admission)
Post-intervention
(2 months after T2)
6 month follow-up
(6 months after T3)
Year 2014 – 2016 2014 – 2017 2014 – 2017 2014 – 2017
Randomisation X
Psychological
flexibility/inflexibility
P:AAQ-II P
P:PPF P
P:AAQ-II P
P:PPF P
P:AAQ-II P
P:PPF P
Mindfulness P:FFMQ-SF P P:FFMQ-SF P P:FFMQ-SF P
Values P:VQ P P:VQ P P:VQ P
Parent mental health P:PCL-S P
P:DASS21 P
P:PCL-S P
P:DASS21 P
P:PCL-S P
P:DASS21 P
Parent adjustment P:WHOQOL-BREF P
P:PECI P
P:FaMM P
P:PTGI-SF P
P:WHOQOL-BREF P
P:PECI P
P:FaMM P
P:PTGI-SF P
P:WHOQOL-BREF P
P:PECI P
P:FaMM P
Child adjustment P:BITSEA
P:BASC-2
P:BITSEA
P:BASC-2
P:BITSEA
P:BASC-2
Child wellbeing P:PedsQL-4.0 P:PedsQL-4.0 P:PedsQL-4.0
Life events
(e.g. job loss/reduced hours,
separation/divorce,
recent pregnancies,
house moves,
personal serious injury/illness)
P:SDV P Pa P:SDV P Pa P:SDV P Pa P:SDV P Pa
Intervention
acceptability/feedback
P:CSS

Featured measurements

AAQ-II: Acceptance and Action Questionnaire - Version II
BASC-2: Behavior Assessment System for Children -Second Edition
BITSEA: Brief Infant Toddler Social Emotional Assessment
CSS: Consumer Satisfaction Scale
DASS21: Depression Anxiety Stress Scales - Short Form (21 items)
FaMM: Family Management Measure
FFMQ-SF: Five Facet Mindfulness Questionnaire – Short Form
PCL-C: PTSD CheckList - Civilian Version
PECI: Parent Experience of Child Illness
PedsQL: Pediatric Quality of Life Inventory (all modules)
PPF: Parental Psychological Flexibility Questionnaire
PTGI-SF: Posttraumatic Growth Inventory - Short Form
VQ: Valuing Questionnaire
WHOQOL-BREF: World Health Organization Quality of Life – Brief (Australian version)

Notes

Cohort:

No data collected for this domain

RCT:

Age appropriate measures of child adjustment (BITSEA or BASC-2) were used.

Age appropriate PedsQL modules were used.

PedsQL-4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales.

Legend

A = Administration report abstraction
C = Index child report (reporting on others)
L = Linkage (to other databases)
M = Medical records data abstraction
O = Observation/direct assessment
N = Nurse report
P = Parent/primary caregiver report
Pe = Peer report
S = Self report
T = Teacher report
X = Undefined
X BF = Pertaining to biological father
X BM = Pertaining to biological mother
C = Pertaining to index child
X F = Pertaining to father
X Fam = Pertaining to family
X G = Pertaining to grandparent(s)
X M = Pertaining to mother
X P = Pertaining to parent(s)
X Pa = Pertaining to partner
X Pe = Pertaining to peers
X Pr = Pertaining to primary caregiver
X Si = Pertaining to sibling(s)