AREST CF: Environmental exposures (toxins and allergens)
Group | CF 0 – 2 years and preschool (3 – 6 years) | Non-CF Bronchoscopy/ BAL | Non-CF lung function preschool | |||||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Wave | W1 | W2 | W3 | W4 | W5 | W6 | W7 | W8 | W9 | W10 | N/A | Screening | Visit 1 | Visit 2 | Visit 3 | Visit 4 (optional) |
Age | 2 – 4 months | 1 year | 2 years | 3 years | 3.5 years | 4 years | 4.5 years | 5 years | 5.5 years | 6 years | 0 – 6 years | 3 – 6 years | 3 – 6 years | Visit 1 + 6 months | Visit 1 + 12 months | Visit 3 + 12 months |
Year | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2006 – ongoing | 2010 – ongoing | 2014 – ongoing | 2014 – ongoing | 2014 – ongoing | 2014 – ongoing | 2014 – ongoing |
Animal/pet exposure | P:RSQ | P:RSQ | P:RSQ | P:RSQ | ||||||||||||
Smoke exposure | P:CF RSQ P:SDV |
P:CF RSQ | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:SDV | P:RSQ | P:RSQ | P:RSQ | P:RSQ | |
Smoking during pregnancy | P:SDV P 1 | P:SDV M |
Visit | Screening/ enrolment | Visit 1A Baseline | Visit 1B | Visit 2 | Visit 3 | Visit 4 | Visit 5A | Visit 5B | Phone interviews (weekly) |
---|---|---|---|---|---|---|---|---|---|
Age | (3 m ± 1m) | (4 m ± 1m) | Within 2 weeks of visit 1A | (6 m ± 1m) | (8 m ± 1m) | (10 m ± 1m) | (12 m ± 1m) | Within 2 weeks of visit 5A | Weekly |
Year | 2013 – 2016 | 2013 – 2016 | 2013 – 2016 | 2013 – 2017 | 2013 – 2017 | 2013 – 2017 | 2014 – 2017 | 2014 – 2017 | 2013 – 2017 |
No data |
Group | CF school age (7 – 9 years) | Non-CF lung function school age | |||||||
---|---|---|---|---|---|---|---|---|---|
Wave | W1 | W2 | W3 | W4 | W5 | Screening | Visit 1 | Visit 2 | Visit 3 |
Age | 7 years | 7.5 years | 8 years | 8.5 years | 9 years | 7 – 9 years | 7 – 9 years | Visit 1 + 6 months | Visit 1 + 12 months |
Year | 2013 – ongoing | 2013 – ongoing | 2013 – ongoing | 2013 – ongoing | 2013 – ongoing | 2016 – ongoing | 2016 – ongoing | 2016 – ongoing | 2016 – ongoing |
Animal/pet exposure | P:RSQ | P:RSQ | P:RSQ | ||||||
Smoke exposure | P:CF RSQ | P:CF RSQ | P:CF RSQ | P:RSQ | P:RSQ | P:RSQ |
Featured measurements
CF RSQ: CF Respiratory Symptom QuestionnaireRSQ: Respiratory Symptom Questionnaire
SDV: Study Devised Variable
Notes
0 – 6 years
1 Includes others who live with family
The CF RSQ was developed by the AREST CF team and collects information about the child’s health (cough, sputum, respiratory tract infection, admissions, exercise and medications) in the preceding three months.
The RSQ was developed by the AREST CF team for non-CF participants.
7 – 9 years
The CF RSQ was developed by the AREST CF team and collects information about the child’s health (cough, sputum, respiratory tract infection, admissions, exercise and medications) in the preceding three months.
The RSQ was developed by the AREST CF team for non-CF participants
Legend
A | = Administration report abstraction |
C | = Index child report (reporting on others) |
L | = Linkage (to other databases) |
M | = Medical records data abstraction |
O | = Observation/direct assessment |
N | = Nurse report |
P | = Parent/primary caregiver report |
Pe | = Peer report |
S | = Self report |
T | = Teacher report |
X | = Undefined |
X BF | = Pertaining to biological father |
X BM | = Pertaining to biological mother |
X C | = Pertaining to index child |
X F | = Pertaining to father |
X Fam | = Pertaining to family |
X G | = Pertaining to grandparent(s) |
X M | = Pertaining to mother |
X P | = Pertaining to parent(s) |
X Pa | = Pertaining to partner |
X Pe | = Pertaining to peers |
X Pr | = Pertaining to primary caregiver |
X Si | = Pertaining to sibling(s) |