TAB: Mental health
Time point | T1 Within 4 weeks of diagnosis/ admission/ surgery |
T2 4 months after diagnosis/ admission/ surgery |
T3 7 months after diagnosis/ admission/ surgery |
T4 19 months after diagnosis/ admission/ surgery |
---|---|---|---|---|
Reported by | Parent | Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
Year | 2010 – 2012 | 2011 – 2012 | 2011 – 2013 | 2012 – 2014 |
Anxiety | P:DASS21 P P:STAI-AD P |
P:DASS21 P P:BITSEA |
P:DASS21 P P:BITSEA |
P:DASS21 P P:BITSEA |
Depression | P:DASS21 P | P:DASS21 P | P:DASS21 P | P:DASS21 P |
General stress | P:DASS21 P | P:DASS21 P | P:DASS21 P | P:DASS21 P |
Acute stress | P:ASDS P | |||
Post traumatic stress | P:PROPS | P:PROPS C:CROPS C P:PCL-S P |
P:PROPS C:CROPS C P:PCL-S P |
P:PROPS C:CROPS C P:PCL-S P |
Stressful life events | P:PAT2.0 Fam | P:PAT2.0 Fam | P:PAT2.0 Fam | P:PAT2.0 Fam |
Behaviours of clinical significance | P:BITSEA | P:BITSEA | P:BITSEA | |
Emotional wellbeing/problems | P:AQoL-8D P P:PAT2.0 P C Si |
P:AQoL-8D P P:PAT2.0 P C Si C:BBSC C P:BITSEA P:PECI P P:PedsQL-4.0 C:PedsQL-4.0 C P:SDQ C:SDQ C P:TAPQOL |
P:AQoL-8D P P:PAT2.0 P C Si C:BBSC C P:BITSEA P:PECI P P:PedsQL-4.0 C:PedsQL-4.0 C P:SDQ C:SDQ C P:TAPQOL |
P:AQoL-8D P P:PAT2.0 P C Si C:BBSC C P:BITSEA P:PECI P P:PedsQL-4.0 C:PedsQL-4.0 C P:SDQ C:SDQ C P:TAPQOL |
Psychosocial health | P:AQoL-8D P P:PAT2.0 P C Si O:PAT-S Fam 1 |
P:AQoL-8D P P:PAT2.0 P C Si O:PAT-S Fam 1 |
P:AQoL-8D P P:PAT2.0 P C Si |
P:AQoL-8D P P:PAT2.0 P C Si |
Postive adjustment | P:PTGI-SF P |
Time point | T1 | T2 | T3 | T4 |
---|---|---|---|---|
Trial phase | Screening (0-4 weeks post admission) |
Pre-intervention (4-12 months post admission) |
Post-intervention (2 months after T2) |
6 month follow-up (6 months after T3) |
Year | 2014 – 2016 | 2014 – 2017 | 2014 – 2017 | 2014 – 2017 |
Anxiety | P:DASS21 P P:BITSEA P:BASC-2 |
P:DASS21 P P:BITSEA P:BASC-2 |
P:DASS21 P P:BITSEA P:BASC-2 |
|
Depression | P:DASS21 P P:BASC-2 |
P:DASS21 P P:BASC-2 |
P:DASS21 P P:BASC-2 |
|
Family history of mental health | P:SDV P Pa | |||
General stress | P:DASS21 P | P:DASS21 P | P:DASS21 P | |
Acute stress | P:ASDS P | |||
Post traumatic stress | P:PCL-S P | P:PCL-S P | P:PCL-S P | |
Stressful life events | P:SDV P | P:SDV P Pa | P:SDV P Pa | P:SDV P Pa |
Body image | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
Somatic symptoms | P:BASC-2 | P:BASC-2 | P:BASC-2 | |
Behaviours of clinical significance |
P:BITSEA | P:BITSEA | P:BITSEA | |
Emotional wellbeing/problems |
P:PedsQL-4.0 P:BITSEA P:BASC-2 P:PECI P P:WHOQOL-BREF P P:AAQ-II P P:PPF P |
P:PedsQL-4.0 P:BITSEA P:BASC-2 P:PECI P P:WHOQOL-BREF P P:AAQ-II P P:PPF P |
P:PedsQL-4.0 P:BITSEA P:BASC-2 P:PECI P P:WHOQOL-BREF P P:AAQ-II P P:PPF P |
|
Psychosocial health | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
Postive adjustment | P:PTGI-SF P | P:PTGI-SF P |
Featured measurements
AAQ-II: Acceptance and Action Questionnaire - Version IIAQoL-8D: Assessment of Quality of Life - 8D
ASDS: Acute Stress Disorder Scale
BASC-2: Behavior Assessment System for Children -Second Edition
BBSC: Benefit and Burden Scale for Children
BITSEA: Brief Infant Toddler Social Emotional Assessment
CROPS: Child Report of Post-traumatic Symptoms
DASS21: Depression Anxiety Stress Scales - Short Form (21 items)
PAT-S: Psychosocial Assessment Tool - Staff
PAT2.0: Psychosocial Assessment Tool - version 2.0
PCL-S: PTSD CheckList - Specific version
PECI: Parent Experience of Child Illness
PedsQL-4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales
PPF: Parental Psychological Flexibility Questionnaire
PROPS: Parent Report of Post-traumatic Symptoms
PTGI-SF: Posttraumatic Growth Inventory - Short Form
SDQ: Strengths and Difficulties Questionnaire
STAI-AD: State-Trait Anxiety Inventory for Adults
TAPQOL: TNO-AZL Preschool Children Quality of Life
WHOQOL-BREF: World Health Organization Quality of Life – Brief (Australian version)
Notes
Age appropriate PedsQL modules were used.
Cohort:
1 Social worker reported
The BITSEA was used with parents of children aged 12 – 24 months only.
For measures of parent-reported child quality of life (PedsQL and TAPQOL), TAPQOL for children aged 0 – 2 years and PedsQL for children aged 2+ years were used.
RCT:
Age appropriate measures of child adjustment (BITSEA or BASC-2) were used.
Legend
A | = Administration report abstraction |
C | = Index child report (reporting on others) |
L | = Linkage (to other databases) |
M | = Medical records data abstraction |
O | = Observation/direct assessment |
N | = Nurse report |
P | = Parent/primary caregiver report |
Pe | = Peer report |
S | = Self report |
T | = Teacher report |
X | = Undefined |
X BF | = Pertaining to biological father |
X BM | = Pertaining to biological mother |
X C | = Pertaining to index child |
X F | = Pertaining to father |
X Fam | = Pertaining to family |
X G | = Pertaining to grandparent(s) |
X M | = Pertaining to mother |
X P | = Pertaining to parent(s) |
X Pa | = Pertaining to partner |
X Pe | = Pertaining to peers |
X Pr | = Pertaining to primary caregiver |
X Si | = Pertaining to sibling(s) |