TAB: Mental health

Time point T1
Within 4 weeks of
diagnosis/ admission/
surgery		 T2
4 months after
diagnosis/ admission/
surgery		 T3
7 months after
diagnosis/ admission/
surgery		 T4
19 months after
diagnosis/ admission/
surgery
Reported by Parent Parent
Child (7 – 18 years)		 Parent
Child (7 – 18 years)		 Parent
Child (7 – 18 years)
Year 2010 – 2012 2011 – 2012 2011 – 2013 2012 – 2014
Anxiety P:DASS21 P
P:STAI-AD P		 P:DASS21 P
P:BITSEA		 P:DASS21 P
P:BITSEA		 P:DASS21 P
P:BITSEA
Depression P:DASS21 P P:DASS21 P P:DASS21 P P:DASS21 P
General stress P:DASS21 P P:DASS21 P P:DASS21 P P:DASS21 P
Acute stress P:ASDS P
Post traumatic stress P:PROPS P:PROPS
C:CROPS C
P:PCL-S P		 P:PROPS
C:CROPS C
P:PCL-S P		 P:PROPS
C:CROPS C
P:PCL-S P
Stressful life events P:PAT2.0 Fam P:PAT2.0 Fam P:PAT2.0 Fam P:PAT2.0 Fam
Behaviours of clinical significance P:BITSEA P:BITSEA P:BITSEA
Emotional wellbeing/problems P:AQoL-8D P
P:PAT2.0 P C Si		 P:AQoL-8D P
P:PAT2.0 P C Si
C:BBSC C
P:BITSEA
P:PECI P
P:PedsQL-4.0
C:PedsQL-4.0 C
P:SDQ
C:SDQ C
P:TAPQOL		 P:AQoL-8D P
P:PAT2.0 P C Si
C:BBSC C
P:BITSEA
P:PECI P
P:PedsQL-4.0
C:PedsQL-4.0 C
P:SDQ
C:SDQ C
P:TAPQOL		 P:AQoL-8D P
P:PAT2.0 P C Si
C:BBSC C
P:BITSEA
P:PECI P
P:PedsQL-4.0
C:PedsQL-4.0 C
P:SDQ
C:SDQ C
P:TAPQOL
Psychosocial health P:AQoL-8D P
P:PAT2.0 P C Si
O:PAT-S Fam 1		 P:AQoL-8D P
P:PAT2.0 P C Si
O:PAT-S Fam 1		 P:AQoL-8D P
P:PAT2.0 P C Si		 P:AQoL-8D P
P:PAT2.0 P C Si
Postive adjustment P:PTGI-SF P
Time point T1 T2 T3 T4
Trial phase Screening
(0-4 weeks
post admission)		 Pre-intervention
(4-12 months
post admission)		 Post-intervention
(2 months after T2)		 6 month follow-up
(6 months after T3)
Year 2014 – 2016 2014 – 2017 2014 – 2017 2014 – 2017
Anxiety P:DASS21 P
P:BITSEA
P:BASC-2		 P:DASS21 P
P:BITSEA
P:BASC-2		 P:DASS21 P
P:BITSEA
P:BASC-2
Depression P:DASS21 P
P:BASC-2		 P:DASS21 P
P:BASC-2		 P:DASS21 P
P:BASC-2
Family history of mental health P:SDV P Pa
General stress P:DASS21 P P:DASS21 P P:DASS21 P
Acute stress P:ASDS P
Post traumatic stress P:PCL-S P P:PCL-S P P:PCL-S P
Stressful life events P:SDV P P:SDV P Pa P:SDV P Pa P:SDV P Pa
Body image P:WHOQOL-BREF P P:WHOQOL-BREF P P:WHOQOL-BREF P
Somatic symptoms P:BASC-2 P:BASC-2 P:BASC-2
Behaviours of clinical
significance		 P:BITSEA P:BITSEA P:BITSEA
Emotional
wellbeing/problems		 P:PedsQL-4.0
P:BITSEA
P:BASC-2
P:PECI P
P:WHOQOL-BREF P
P:AAQ-II P
P:PPF P		 P:PedsQL-4.0
P:BITSEA
P:BASC-2
P:PECI P
P:WHOQOL-BREF P
P:AAQ-II P
P:PPF P		 P:PedsQL-4.0
P:BITSEA
P:BASC-2
P:PECI P
P:WHOQOL-BREF P
P:AAQ-II P
P:PPF P
Psychosocial health P:WHOQOL-BREF P P:WHOQOL-BREF P P:WHOQOL-BREF P
Postive adjustment P:PTGI-SF P P:PTGI-SF P

Featured measurements

AAQ-II: Acceptance and Action Questionnaire - Version II
AQoL-8D: Assessment of Quality of Life - 8D
ASDS: Acute Stress Disorder Scale
BASC-2: Behavior Assessment System for Children -Second Edition
BBSC: Benefit and Burden Scale for Children
BITSEA: Brief Infant Toddler Social Emotional Assessment
CROPS: Child Report of Post-traumatic Symptoms
DASS21: Depression Anxiety Stress Scales - Short Form (21 items)
PAT-S: Psychosocial Assessment Tool - Staff
PAT2.0: Psychosocial Assessment Tool - version 2.0
PCL-S: PTSD CheckList - Specific version
PECI: Parent Experience of Child Illness
PedsQL-4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales
PPF: Parental Psychological Flexibility Questionnaire
PROPS: Parent Report of Post-traumatic Symptoms
PTGI-SF: Posttraumatic Growth Inventory - Short Form
SDQ: Strengths and Difficulties Questionnaire
STAI-AD: State-Trait Anxiety Inventory for Adults
TAPQOL: TNO-AZL Preschool Children Quality of Life
WHOQOL-BREF: World Health Organization Quality of Life – Brief (Australian version)

Notes

Age appropriate PedsQL modules were used.

Cohort:

1 Social worker reported

The BITSEA was used with parents of children aged 12 – 24 months only.

For measures of parent-reported child quality of life (PedsQL and TAPQOL), TAPQOL for children aged 0 – 2 years and PedsQL for children aged 2+ years were used.

RCT:

Age appropriate measures of child adjustment (BITSEA or BASC-2) were used.

Legend

A = Administration report abstraction
C = Index child report (reporting on others)
L = Linkage (to other databases)
M = Medical records data abstraction
O = Observation/direct assessment
N = Nurse report
P = Parent/primary caregiver report
Pe = Peer report
S = Self report
T = Teacher report
X = Undefined
X BF = Pertaining to biological father
X BM = Pertaining to biological mother
X C = Pertaining to index child
X F = Pertaining to father
X Fam = Pertaining to family
X G = Pertaining to grandparent(s)
X M = Pertaining to mother
X P = Pertaining to parent(s)
X Pa = Pertaining to partner
X Pe = Pertaining to peers
X Pr = Pertaining to primary caregiver
X Si = Pertaining to sibling(s)