TAB: Relationships
| Time point | T1 Within 4 weeks of diagnosis/ admission/ surgery |
T2 4 months after diagnosis/ admission/ surgery |
T3 7 months after diagnosis/ admission/ surgery |
T4 19 months after diagnosis/ admission/ surgery |
|---|---|---|---|---|
| Reported by | Parent | Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
| Year | 2010 – 2012 | 2011 – 2012 | 2011 – 2013 | 2012 – 2014 |
| Parent-child bonding | P:PAT2.0 1 | P:PAT2.0 1 | P:PAT2.0 1 | P:PAT2.0 1 |
| Peer relations/problems | P:PAT2.0 C Si | P:PAT2.0 C Si P:PedsQL-4.0 C:PedsQL-4.0 C P:SDQ C:SDQ C P:TAPQOL |
P:PAT2.0 C Si P:PedsQL-4.0 C:PedsQL-4.0 C P:SDQ C:SDQ C P:TAPQOL |
P:PAT2.0 C Si P:PedsQL-4.0 C:PedsQL-4.0 C P:SDQ C:SDQ C P:TAPQOL |
| General relations | P:AQoL-8D P | P:AQoL-8D P | P:AQoL-8D P | P:AQoL-8D P |
| Family functioning | P:FES 2 | P:FaMM | P:FaMM | P:FaMM |
| Time point | T1 | T2 | T3 | T4 |
|---|---|---|---|---|
| Trial phase | Screening (0-4 weeks post admission) |
Pre-intervention (4-12 months post admission) |
Post-intervention (2 months after T2) |
6 month follow-up (6 months after T3) |
| Year | 2014 – 2016 | 2014 – 2017 | 2014 – 2017 | 2014 – 2017 |
| Intimate/romantic relations | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
| Sexual relations | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
| Peer relations/problems | P:PedsQL-4.0 | P:PedsQL-4.0 | P:PedsQL-4.0 | |
| General relations | P:BASC-2 P:WHOQOL-BREF P |
P:BASC-2 P:WHOQOL-BREF P |
P:BASC-2 P:WHOQOL-BREF P |
|
| Family functioning | P:FaMM | P:FaMM | P:FaMM |
Featured measurements
AQoL-8D: Assessment of Quality of Life - 8DBASC-2: Behavior Assessment System for Children -Second Edition
FaMM: Family Management Measure
FES: Family Environment Scale
PAT2.0: Psychosocial Assessment Tool - version 2.0
PedsQL-4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales
SDQ: Strengths and Difficulties Questionnaire
TAPQOL: TNO-AZL Preschool Children Quality of Life
WHOQOL-BREF: World Health Organization Quality of Life – Brief (Australian version)
Notes
Age appropriate PedsQL modules were used.
Cohort:
1 In consultation with the original authors, the Psychosocial Assessment Tool was extended to include four novel items examining infant risk factors (sleeping, feeding, crying and bonding difficulties), for use with parents of infants diagnosed with congenital heart disease
2 The 3rd edition of the Family Environment Scale was used
For measures of parent-reported child quality of life (PedsQL and TAPQOL), TAPQOL for children aged 0 – 2 years and PedsQL for children aged 2+ years were used.
RCT:
The BASC-2 was used with parents of children aged 2 years or over.
Legend
| A | = Administration report abstraction |
| C | = Index child report (reporting on others) |
| L | = Linkage (to other databases) |
| M | = Medical records data abstraction |
| O | = Observation/direct assessment |
| N | = Nurse report |
| P | = Parent/primary caregiver report |
| Pe | = Peer report |
| S | = Self report |
| T | = Teacher report |
| X | = Undefined |
| X BF | = Pertaining to biological father |
| X BM | = Pertaining to biological mother |
| X C | = Pertaining to index child |
| X F | = Pertaining to father |
| X Fam | = Pertaining to family |
| X G | = Pertaining to grandparent(s) |
| X M | = Pertaining to mother |
| X P | = Pertaining to parent(s) |
| X Pa | = Pertaining to partner |
| X Pe | = Pertaining to peers |
| X Pr | = Pertaining to primary caregiver |
| X Si | = Pertaining to sibling(s) |