TAB: Resilience and wellbeing
Time point | T1 Within 4 weeks of diagnosis/ admission/ surgery |
T2 4 months after diagnosis/ admission/ surgery |
T3 7 months after diagnosis/ admission/ surgery |
T4 19 months after diagnosis/ admission/ surgery |
---|---|---|---|---|
Reported by | Parent | Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
Parent Child (7 – 18 years) |
Year | 2010 – 2012 | 2011 – 2012 | 2011 – 2013 | 2012 – 2014 |
Social support (including emotional, instrumental, informational) |
P:PAT2.0 P:SDV |
P:PAT2.0 P:SDV |
P:PAT2.0 P:SDV |
P:PAT2.0 P:SDV |
Self-esteem | P:AQoL-8D P | P:AQoL-8D P | P:AQoL-8D P | P:AQoL-8D P |
Prosocial behaviour | P:SDQ C:SDQ C |
P:SDQ C:SDQ C |
P:SDQ C:SDQ C |
|
Quality of life | P:AQoL-8D P | P:AQoL-8D P P:PedsQL-4.0 C:PedsQL-4.0 C P:TAPQOL |
P:AQoL-8D P P:PedsQL-4.0 C:PedsQL-4.0 C P:TAPQOL |
P:AQoL-8D P P:PedsQL-4.0 C:PedsQL-4.0 C P:TAPQOL |
Stressful life events | P:PAT2.0 Fam | P:PAT2.0 Fam | P:PAT2.0 Fam | P:PAT2.0 Fam |
Positive adjustment | P:PTGI-SF P | |||
Psychosocial health | P:AQoL-8D P P:PAT2.0 P C Si O:PAT-S Fam 1 |
P:AQoL-8D P P:PAT2.0 P C Si O:PAT-S Fam 1 |
P:AQoL-8D P P:PAT2.0 P C Si |
P:AQoL-8D P P:PAT2.0 P C Si |
Time point | T1 | T2 | T3 | T4 |
---|---|---|---|---|
Trial phase | Screening (0-4 weeks post admission) |
Pre-intervention (4-12 months post admission) |
Post-intervention (2 months after T2) |
6 month follow-up (6 months after T3) |
Year | 2014 – 2016 | 2014 – 2017 | 2014 – 2017 | 2014 – 2017 |
Coping skills | P:FFMQ-SF P | P:FFMQ-SF P | P:FFMQ-SF P | |
Life satisfaction | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
Social skills | P:BASC-2 | P:BASC-2 | P:BASC-2 | |
Social support (including emotional, instrumental, informational) |
P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
Self-esteem | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P | |
Prosocial behaviour | P:BASC-2 | P:BASC-2 | P:BASC-2 | |
Quality of life | P:PedsQL-4.0 P:WHOQOL-BREF P |
P:PedsQL-4.0 P:WHOQOL-BREF P |
P:PedsQL-4.0 P:WHOQOL-BREF P |
|
Stressful life events | P:SDV P | P:SDV P Pa | P:SDV P Pa | P:SDV P Pa |
Postive adjustment | P:PTGI-SF P | P:PTGI-SF P | ||
Psychosocial health | P:WHOQOL-BREF P | P:WHOQOL-BREF P | P:WHOQOL-BREF P |
Featured measurements
AQoL-8D: Assessment of Quality of Life - 8DBASC-2: Behavior Assessment System for Children -Second Edition
FFMQ-SF: Five Facet Mindfulness Questionnaire – Short Form
PAT-S: Psychosocial Assessment Tool - Staff
PAT2.0: Psychosocial Assessment Tool - version 2.0
PECI: Parent Experience of Child Illness
PedsQL-4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales
PTGI-SF: Posttraumatic Growth Inventory - Short Form
SDQ: Strengths and Difficulties Questionnaire
SDV: Study Devised Variable
TAPQOL: TNO-AZL Preschool Children Quality of Life
WHOQOL-BREF: World Health Organization Quality of Life – Brief (Australian version)
Notes
Age appropriate PedsQL modules were used.
Cohort:
1 Social worker reported
The parent-reported SDQ was used with parents of children aged 2+ years only.
For measures of parent-reported child quality of life (PedsQL and TAPQOL), TAPQOL for children aged 0 – 2 years and PedsQL for children aged 2+ years were used.
RCT:
The BASC-2 was used with parents of children aged 2 years or over.
Legend
A | = Administration report abstraction |
C | = Index child report (reporting on others) |
L | = Linkage (to other databases) |
M | = Medical records data abstraction |
O | = Observation/direct assessment |
N | = Nurse report |
P | = Parent/primary caregiver report |
Pe | = Peer report |
S | = Self report |
T | = Teacher report |
X | = Undefined |
X BF | = Pertaining to biological father |
X BM | = Pertaining to biological mother |
X C | = Pertaining to index child |
X F | = Pertaining to father |
X Fam | = Pertaining to family |
X G | = Pertaining to grandparent(s) |
X M | = Pertaining to mother |
X P | = Pertaining to parent(s) |
X Pa | = Pertaining to partner |
X Pe | = Pertaining to peers |
X Pr | = Pertaining to primary caregiver |
X Si | = Pertaining to sibling(s) |