Year ≥ 2015 (VNTDR commenced in 2015, but individuals born after 1993 onwards are included in the dataset)
Age 0 – 19 years
# 195 as of May 2019
Time Point Ascertainment Registry – baseline Registry – follow-up(s)
Intellectual impairment (inc. date assessed and measure used) M
Developmental assessments (inc. date assessed and measure used) M
Functional Mobility Scale score (5, 50, 500 metres) M:FMS

Featured measurements

FMS: Functional Mobility Scale


A = Administration report abstraction
C = Index child report (reporting on others)
L = Linkage (to other databases)
M = Medical records data abstraction
O = Observation/direct assessment
N = Nurse report
P = Parent/primary caregiver report
Pe = Peer report
S = Self report
T = Teacher report
X = Undefined
X BF = Pertaining to biological father
X BM = Pertaining to biological mother
C = Pertaining to index child
X F = Pertaining to father
X Fam = Pertaining to family
X G = Pertaining to grandparent(s)
X M = Pertaining to mother
X P = Pertaining to parent(s)
X Pa = Pertaining to partner
X Pe = Pertaining to peers
X Pr = Pertaining to primary caregiver
X Si = Pertaining to sibling(s)