| Year |
≥ 2015 (VNTDR commenced in 2015, but individuals born after 1993 onwards are included in the dataset) |
| Age |
0 – 19 years |
| # |
195 as of May 2019 |
| Time Point |
Ascertainment |
Registry – baseline |
Registry – follow-up(s) |
| Intellectual impairment (inc. date assessed and measure used) |
|
|
M |
| Developmental assessments (inc. date assessed and measure used) |
|
|
M |
| Functional Mobility Scale score (5, 50, 500 metres) |
|
|
M:FMS |
Featured measurements
FMS: Functional Mobility Scale
Legend
| A |
= Administration report abstraction |
| C |
= Index child report (reporting on others) |
| L |
= Linkage (to other databases) |
| M |
= Medical records data abstraction |
| O |
= Observation/direct assessment |
| N |
= Nurse report |
| P |
= Parent/primary caregiver report |
| Pe |
= Peer report |
| S |
= Self report |
| T |
= Teacher report |
| X |
= Undefined |
| X BF |
= Pertaining to biological father |
| X BM |
= Pertaining to biological mother |
| X C |
= Pertaining to index child |
| X F |
= Pertaining to father |
| X Fam |
= Pertaining to family |
| X G |
= Pertaining to grandparent(s) |
| X M |
= Pertaining to mother |
| X P |
= Pertaining to parent(s) |
| X Pa |
= Pertaining to partner |
| X Pe |
= Pertaining to peers |
| X Pr |
= Pertaining to primary caregiver |
| X Si |
= Pertaining to sibling(s) |
