Year 2014 – ongoing
Age 0 – 25 years (cases)
# > 1000 as of March 2019
Time Point Diagnosis/
pre-treatment
Treatment Post-treatment/
monitoring
Relapse
Buccal X X X X
Saliva X X X X
Venous blood X X X X
Newborn screening (Guthrie) card X
Bone marrow X X X X
Post-operative tumour specimens X X  X X
Non-cancerous specimens 1 X X  X X
Body fluid(s) (e.g. ascites, cerebral spinal, pericardial, joint) X X  X X
Post-mortem central nervous system tissue (tumours, non-cancerous) X X X X
Cell line generation (optional) X X  X X
Induced pluripotent stem cell (iPSC) line generation (optional) X X X X

Notes

Above is a list of the types of samples that may be collected. For instance, cerebral spinal fluid is only collected if clinically indicated.

Samples include: those left over from standard clinical care tests, those taken in addition to those required for clinical testing but at the time of collection for clinical purposes (e.g. blood), and those collected solely for research (e.g. saliva).

As of March 2019, over 10,000 primary specimens have been collected.

1 Non-cancerous (normal) tissue resected during surgery, or samples from a participant not diagnosed with cancer, are kept for comparison to cancer samples.

Legend

A = Administration report abstraction
C = Index child report (reporting on others)
L = Linkage (to other databases)
M = Medical records data abstraction
O = Observation/direct assessment
N = Nurse report
P = Parent/primary caregiver report
Pe = Peer report
S = Self report
T = Teacher report
X = Undefined
X BF = Pertaining to biological father
X BM = Pertaining to biological mother
C = Pertaining to index child
X F = Pertaining to father
X Fam = Pertaining to family
X G = Pertaining to grandparent(s)
X M = Pertaining to mother
X P = Pertaining to parent(s)
X Pa = Pertaining to partner
X Pe = Pertaining to peers
X Pr = Pertaining to primary caregiver
X Si = Pertaining to sibling(s)