The Victorian Cerebral Palsy Register (VCPR)

The Victorian Cerebral Palsy Register (VCPR) collects information about people with cerebral palsy born since 1970. The Victorian Register is one of the largest single cerebral palsy registers in the world (with ~100 new cases added yearly) and this places it in a unique position to contribute to what is known about cerebral palsy worldwide. The ultimate goal of this project is to advance our knowledge in an effort to provide better help and support for everyone with cerebral palsy, their families and the community in which they live.
VCPR aims to describe trends in the prevalence and clinical profile of cerebral palsy; investigate causal pathways and identify potential avenues for prevention or amelioration of the condition.

Study Summary
Study name The Victorian Cerebral Palsy Register
Study abbreviation VCPR
Current principal investigator/s Dinah Reddihough
Current project manager

Sue Reid

Primary Institution/s Murdoch Children’s Research Institute - MCRI
Collaborating Institution/s The Royal Children’s Hospital - RCH
Monash Children’s Hospital
Mercy Hospital for Women
Royal Women’s Hospital
Major funding source/s Cerebral Palsy Alliance
Victorian Department of Health and Human Services
Study website
Key reference for study
Study focus

The main aims of the VCPR are as follows:
1. To describe trends in the prevalence and clinical profile of cerebral palsy;
2. To investigate causal pathways and identify potential avenues for prevention or amelioration of the condition;
3. To identify specific groups of children/adults for further research;
4. To contribute to other Australian and international datasets on cerebral palsy.

Sampling frame

Individuals who were born or have lived in Victoria, with a date of birth on or after 1st January 1970, whose condition fits the definition for cerebral palsy i.e. a motor problem due to a lesion in the immature brain, which persists until after the age of 5 years and is non-progressive. The brain injury/abnormality must have occurred before the age of 2 years.

Primary study type Register
Year commenced


Is this study ongoing? Yes - the study is ongoing
Ongoing recruitment? Yes
Sample size (N)

6400 cases as of February 2023

Survey data available? No
Imaging data available? Yes
Linkage to administrative dataset/s? Yes, linkage to (at least one) administrative dataset completed
Biosamples available? No
Are data available to others outside study team, with appropriate safeguards and structures in line with the cohort’s ethics and governance processes? Yes
Are there any costs associated with data/sample access for approved requests? There may be costs associated with access, evaluated on a case by case basis
Broadest type of participant consent available Extended consent (can be used for future ethically approved research related to this project)


Cooper MS, Mackay MT, Dagia C, Fahey MC, Howell KB, Reddihough D, Reid S, Harvey AS. (2023). Epilepsy syndromes in cerebral palsy: varied, evolving and mostly self-limited. Brain, 146(2), 587 - 599. DOI: 10.1093/brain/awac274

Hinwood GL, Loftus H, Shepherd DA, Guzys A, Reddihough DS, Reid SM. (2023). Survival of individuals with cerebral palsy in Victoria, Australia: A longitudinal cohort study spanning four decades. Dev Med Child Neurol, 65(4), 580 - 587. DOI: 10.1111/dmcn.15420

Waight E, McIntyre S, Woolfenden S, Watson L, Reid S, Scott H, Martin T, Webb A, Badawi N, Smithers-Sheedy H, Australian Cerebral Palsy Register Group . (2023). Temporal trends, clinical characteristics, and sociodemographic profile of post-neonatally acquired cerebral palsy in Australia, 1973-2012: A population-based observational study. Dev Med Child Neurol, 65(1), 107 - 116. DOI: 10.1111/dmcn.15293


Goldsmith S, McIntyre S, Scott H, Himmelmann K, Smithers-Sheedy H, Andersen GL, Blair E, Badawi N, Garne E, Comprehensive CA-CP Study Group . (2021). Congenital anomalies in children with postneonatally acquired cerebral palsy: an international data linkage study. Dev Med Child Neurol, 63(4), 421 - 428. DOI: 10.1111/dmcn.14805


Wong A-L, Meehan E, Babl FE, Reid SM, Catto-Smith A, Williams K, Reddihough DS. (2019). Paediatric emergency department presentations due to feeding tube complications in children with cerebral palsy. J Paediatr Child Health, 55(10), 1230 - 1236. DOI: 10.1111/jpc.14386


Cooper MS, Mackay MT, Fahey M, Reddihough D, Reid SM, Williams K, Harvey AS. (2017). Seizures in Children With Cerebral Palsy and White Matter Injury. Pediatrics, 139(3). DOI: 10.1542/peds.2016-2975


Meehan E, Harvey A, Reid SM, Reddihough DS, Williams K, Crompton KE, Omar S, Scheinberg A. (2016). Therapy service use in children and adolescents with cerebral palsy: An Australian perspective. J Paediatr Child Health, 52(3), 308 - 314. DOI: 10.1111/jpc.13021


Smithers-Sheedy H, Raynes-Greenow C, Badawi N, Reid SM, Meehan E, Gibson CS, Dale RC, Jones CA. (2014). Neuroimaging findings in a series of children with cerebral palsy and congenital cytomegalovirus infection. Infect Disord Drug Targets, 14(3), 185 - 190. DOI: 10.2174/1871526515999150320154858


Lionti T, Reid SM, Reddihough D, Sabin MA. (2013). Monitoring height and weight: findings from a developmental paediatric service. J Paediatr Child Health, 49(12), 1063 - 1068. DOI: 10.1111/j.1440-1754.2012.02470.x


Reid SM, Carlin JB, Reddihough DS. (2011). Distribution of motor types in cerebral palsy: how do registry data compare? Dev Med Child Neurol, 53(3), 233 - 238. DOI: 10.1111/j.1469-8749.2010.03844.x


Howard J, Soo B, Graham HK, Boyd RN, Reid S, Lanigan A, Wolfe R, Reddihough DS. (2005). Cerebral palsy in Victoria: motor types, topography and gross motor function. J Paediatr Child Health, 41(9-10), 479 - 483. DOI: 10.1111/j.1440-1754.2005.00687.x


Johnson HM, Reid SM, Hazard CJ, Lucas JO, Desai M, Reddihough DS. (2004). Effectiveness of the Innsbruck Sensorimotor Activator and Regulator in improving saliva control in children with cerebral palsy. Dev Med Child Neurol, 46(1), 39 - 45. DOI: 10.1017/s0012162204000076


Reid SM, Johnstone BR, Westbury C, Rawicki B, Reddihough DS. (). Randomized trial of botulinum toxin injections into the salivary glands to reduce drooling in children with neurological disorders Developmental Medicine & Child Neurology, 50(2), 123 - 128. DOI: 10.1111/j.1469-8749.2007.02015.x

Study Contacts
Principal investigator/s Dinah Reddihough
Project manager

Sue Reid

Study Contact

Address: Neurodisability and Rehabilitation Research
Murdoch Children's Research Institute,
Royal Children’s Hospital
Flemington Road, Parkville
Victoria 3052 Australia