LifeCourse A Melbourne Children's Research Initiative

VicCHILD: Other health information

Relevant LifeCourse Constructs	Year	2011-Ongoing	2012-Ongoing	2014-Ongoing	2012-Ongoing	2020	2021
	Phase	Enrolment	2 year old follow-up	5-7 year old follow-up	9-12 year old follow-up	COVID-19 Survey	COVID-19 Follow-Up Survey
	Age	3 months - 8 years	20-30 months	5-8 years	9-12 years	3 months - 18 years	1-18 years
	N	1200	405	368	160	493	362
Activity of daily living			P:PedsQL 2.0-FIM ^P P:PedsQL 2.0-FIM ^Fam P:PedsQL 4.0 SF15 ^I	P:PedsQL 4.0 SF15 ^I	P:AQoL-4D ^P P:AQoL-4D ^P P:PedsQL 4.0 SF15 ^I P:PedsQL 2.0-FIM ^I	S:PedsQL 4.0 ^I P:PedsQL 4.0 SF15 ^I P:PedsQL 2.0-FIM ^I
Age at diagnosis			P:VCh ^I
Burden of disease			P:PedsQL 2.0-FIM ^P P:PedsQL 2.0-FIM ^Fam P:VCh-HL ^I		P:VCh-HL ^I P:PedsQL 2.0-FIM ^I	P:VCh-HL ^I P:PedsQL 2.0-FIM ^I
Comorbid conditions					P:VCh ^I	P:SRH ^I
Congenital disorder			L:VBDR ^I
COVID-19 infection							P:CRISIS-HE ^I P:CRISIS-HE ^Fam	P:CRISIS-HE ^I P:CRISIS-HE ^Fam
COVID-19 test							P:CRISIS-HE ^I P:CRISIS-HE ^Fam	P:CRISIS-HE ^I P:CRISIS-HE ^Fam
Discussion about personal health			P:PedsQL 2.0-FIM ^P P:PedsQL 2.0-FIM ^Fam		P:PedsQL 2.0-FIM ^I	P:PedsQL 2.0-FIM ^I
Exposure to viral disease							P:CRISIS-HE ^I P:CRISIS-HE ^Fam	P:CRISIS-HE ^I P:CRISIS-HE ^Fam
Family medical history			P:VCh-FHC ^Fam
Fatigue					P:PedsQL 3.0-MFS ^I
General wellbeing			P:PedsQL-IS ^I P:SRH ^I P:PedsQL 2.0-FIM ^P P:PedsQL 2.0-FIM ^Fam P:SRH ^IP	P:SRH ^I P:SRH ^P P:SRH ^IP	P:PedsQL 2.0-FIM ^I P:SRH ^P P:SRH ^IP	S:PedsQL-GWB ^I P:PedsQL 2.0-FIM ^I P:SRH ^P P:SRH ^IP	P:CRISIS-BG ^P	P:CRISIS-BG ^P
Health promoting behaviour							P:CRISIS-HE ^I P:CRISIS-HE ^Fam	P:CRISIS-HE ^I P:CRISIS-HE ^Fam
Illness			P:VCh-POH ^M
Medical diagnosis					P:VCh ^P P:VCh ^IP	P:VCh ^P P:VCh ^IP
Medical examinations/reports			L:RVEEH ^I	P:VCh ^I
Physical health problems			P:VCh ^I P:VCh ^P P:PedsQL-IS ^I
Sensory function					P:AQoL-4D ^P P:AQoL-4D ^P

Featured measurements

AQoL-4D: : Assessment of Quality of Life-4D
CRISIS-BG: : CoRonavIruS Health Impact Survey - Background
CRISIS-HE: : CoRonavIruS Health Impact Survey - COVID-19 Health/Exposure status
PedsQL 2.0-FIM: : Pediatric Quality of Life Inventory – 2.0 - Family Impact Module
PedsQL 4.0: : Pediatric Quality of Life Inventory – 4.0 Generic Core Scales
PedsQL 4.0 SF15: : Pediatric Quality of Life Inventory – 4.0 SF15 Generic Core Scales
PedsQL-GWB: : Pediatric Quality of Life Inventory – General Well-Being Scale
PedsQL-IS: : Pediatric Quality of Life Inventory – Infant Scales
PedsQL 3.0-MFS: : Pediatric Quality of Life Inventory – Multidimensional Fatigue Scale
RVEEH: : Royal Victorian Eye and Ear Hospital
SRH: : Self-Rated Health Indicator
VCh-FHC: : VicCHILD devised - Family History of Condition Item set
VCh-HL: : VicCHILD devised - Hearing Loss Item set
VCh-POH: : VicCHILD devised - Pregnancy and Obstetric History Item set
VBDR: : Victorian Birth Defects Register
VCh: : Victorian Childhood Hearing Impairment Longitudinal Databank-devised measure

Legend

B: = Biosample collected
BA: = Biosample analysis
G: = Grandparent(s) completed questionnaire
L: = Data linkage
N: = Nurse completed questionnaire
O: = Observation or direct assessment
Of: = Offspring completed questionnaire
P: = Parent/guardian completed questionnaire
Pe: = Peer completed questionnaire
R: = Records abstraction
S: = Self (primary participant) completed questionnaire
T: = Teacher completed questionnaire
X: = Other source
X ^F: = Pertains to father
X ^Fam: = Pertains to family
X ^G: = Pertains to grandparent(s)
X ^I: = Pertains to primary participant
X ^IP: = Pertains to partner
X ^M: = Pertains to mother
X ^O: = Pertains to offspring
X ^P: = Pertains to parent/guardian(s)
X ^Pe: = Pertains to peers
X ^Si: = Pertains to sibling(s)
X ^T: = Pertains to teacher(s)
X ^X: = Pertains to other reportees

Metadata presented by LifeCourse provides a crucial first step in understanding the available data across studies. It does not take the place of detailed study documentation, which should always be consulted during design and analysis.