Group |
CF 0 – 2 years and preschool (3 – 6 years) |
Non-CF Bronchoscopy/ BAL |
Non-CF lung function preschool |
Wave |
W1 |
W2 |
W3 |
W4 |
W5 |
W6 |
W7 |
W8 |
W9 |
W10 |
N/A |
Screening |
Visit 1 |
Visit 2 |
Visit 3 |
Visit 4 (optional) |
Age |
2 – 4 months |
1 year |
2 years |
3 years |
3.5 years |
4 years |
4.5 years |
5 years |
5.5 years |
6 years |
0 – 6 years |
3 – 6 years |
3 – 6 years |
Visit 1 + 6 months |
Visit 1 + 12 months |
Visit 3 + 12 months |
Year |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2006 – ongoing |
2010 – ongoing |
2014 – ongoing |
2014 – ongoing |
2014 – ongoing |
2014 – ongoing |
2014 – ongoing |
No data |
Visit |
Screening/ enrolment |
Visit 1A Baseline |
Visit 1B |
Visit 2 |
Visit 3 |
Visit 4 |
Visit 5A |
Visit 5B |
Phone interviews (weekly) |
Age |
(3 m ± 1m) |
(4 m ± 1m) |
Within 2 weeks of visit 1A |
(6 m ± 1m) |
(8 m ± 1m) |
(10 m ± 1m) |
(12 m ± 1m) |
Within 2 weeks of visit 5A |
Weekly |
Year |
2013 – 2016 |
2013 – 2016 |
2013 – 2016 |
2013 – 2017 |
2013 – 2017 |
2013 – 2017 |
2014 – 2017 |
2014 – 2017 |
2013 – 2017 |
No data |
GroupCF school age (7 – 9 years)Non-CF lung function school age
Wave |
W1 |
W2 |
W3 |
W4 |
W5 |
Screening |
Visit 1 |
Visit 2 |
Visit 3 |
Age |
7 years |
7.5 years |
8 years |
8.5 years |
9 years |
7 – 9 years |
7 – 9 years |
Visit 1 + 6 months |
Visit 1 + 12 months |
Year |
2013 – ongoing |
2013 – ongoing |
2013 – ongoing |
2013 – ongoing |
2013 – ongoing |
2016 – ongoing |
2016 – ongoing |
2016 – ongoing |
2016 – ongoing |
Education level/completion |
S:CFQ-R |
|
S:CFQ-R |
|
S:CFQ-R |
|
|
|
|
School attendance |
P:CFQ-R
S:CFQ-R |
|
P:CFQ-R
S:CFQ-R |
|
P:CFQ-R
S:CFQ-R |
|
|
|
|
Featured measurements
CFQ-R: Cystic Fibrosis Questionnaire - Revised
Legend
A |
= Administration report abstraction |
C |
= Index child report (reporting on others) |
L |
= Linkage (to other databases) |
M |
= Medical records data abstraction |
O |
= Observation/direct assessment |
N |
= Nurse report |
P |
= Parent/primary caregiver report |
Pe |
= Peer report |
S |
= Self report |
T |
= Teacher report |
X |
= Undefined |
X BF |
= Pertaining to biological father |
X BM |
= Pertaining to biological mother |
X C |
= Pertaining to index child |
X F |
= Pertaining to father |
X Fam |
= Pertaining to family |
X G |
= Pertaining to grandparent(s) |
X M |
= Pertaining to mother |
X P |
= Pertaining to parent(s) |
X Pa |
= Pertaining to partner |
X Pe |
= Pertaining to peers |
X Pr |
= Pertaining to primary caregiver |
X Si |
= Pertaining to sibling(s) |