Domain
Other health information
These measures have been identified as commonly used measures within the LifeCourse cohorts. These measures were identified to encourage potential opportunities for data harmonisation. The descriptions provided are intended to give cohort custodians and data users some common criteria to assess a survey for appropriateness to use in their own studies. It is not intended to mandate the use of any measure, or provide a comprehensive understanding of these measures.
This information was collated by the LifeCourse team from scoring manuals and documentation, publications, and official measure websites. To read about this process in more detail, access our report.
| Measure | No. of cohorts using measure | Cost and accessibility | Time to complete | Key reference/s and measure information | Reference frame | Constructs assessed by measure | Age range |
|---|---|---|---|---|---|---|---|
| PedsQL 4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales | 9 | 5-10 minutes (estimate) |
Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL™* 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambulatory pediatrics, 3(6), 329-341. DOI: 10.1367/1539-4409(2003)003<0329:tpaapp>2.0.co;2 |
Past one month |
|
|
|
| PedsQL-GWB: Pediatric Quality of Life Inventory – General Well-Being Scale | 5 | 1-2 minutes (estimate) |
Past one month |
|
Parent or self-report for ages 8-12, 13-18, and 18-25 |
- Ability to manage disease
- Activity of daily living
- Age at diagnosis
- Birthmark
- Bone density
- Bowel care management
- Bowel incontinence
- Burden of disease
- Comorbid conditions
- Congenital disorder
- COVID-19 infection
- COVID-19 test
- Death
- Difficulty swallowing
- Disability
- Discussion about personal health
- Exposure to viral disease
- Eye infection
- Family history of diabetes mellitus
- Family history of disorder
- Family history of stroke
- Family medical history
- Fatigue
- Food intolerance
- Frequency of bowel action
- Gastroesophageal reflux disease
- Gastrointestinal symptom
- General symptom description
- General wellbeing
- Health perceptions
- Health promoting behaviour
- Health seeking behaviour
- Heartburn
- Illness
- Injury
- Medical diagnosis
- Medical examinations/reports
- Medical history
- Nausea
- Pain
- Pelvic floor dysfunction
- Physical health problems
- Response to immunisation
- Sensory function
- Skin
- Stomach ache
- Tooth decay
- Type of diagnosis
- Urinary incontinence
- Viral infection
- Visual acuity
- Vital signs
- Vitamin D deficiency
- ACQ: Asthma Control Questionnaire
- AEDC: Australian Early Development Census
- AEDC-PHW: Australian Early Development Census - Physical Health and Wellbeing
- AQoL-4D: Assessment of Quality of Life-4D
- AQoL-4D-IL: Assessment of Quality of Life-4D - Independent Living
- AQoL-4D-MH: Assessment of Quality of Life-4D - Senses
- AQoL-6D: Assessment of Quality of Life-6D
- AQoL-6D-IL: Assessment of Quality of Life-6D - Independent Living
- AQoL-6D-P: Assessment of Quality of Life-6D - Pain
- AQoL-6D-S: Assessment of Quality of Life-6D - Senses
- AQoL-8D: Assessment of Quality of Life-8D
- AQoL-8D-IL: Assessment of Quality of Life-8D - Independent Living
- AQoL-8D-P: Assessment of Quality of Life-8D - Pain
- AQoL-8D-S: Assessment of Quality of Life-8D - Senses
- ATP-CH: ATP devised - Child Health Item set
- ATP-GH: ATP devised - General Health Item Set
- ATP-PMH: ATP devised - Past Medical History Item Set
- Bayley-III: Bayley Scales of Infant and Toddler Development, Third Edition
- Bayley-III-AB: Bayley Scales of Infant and Toddler Development, Third Edition - Adaptive Behaviour
- BBB-GH: Triple B devised - General Health Item set
- BBB-PH: Triple B devised - Physical Health Problems Item set
- BPI: The Brief Pain Inventory
- CASPE: COVID-19 Adolescent Symptom and Psychological Experience Questionnaire
- CASPE-A: COVID-19 Adolescent Symptom and Psychological Experience Questionnaire: Module A - Experience Related to COVID-19
- CASPE-D: COVID-19 Adolescent Symptom and Psychological Experience Questionnaire: Module D - Social Experience
- CHQ: Child Health Questionnaire
- CHQ-BP: Child Health Questionnaire - Bodily Pain
- CHQ-GH: Child Health Questionnaire - General Health
- CHQ-PF: Child Health Questionnaire - Physical Functioning
- CHQ-PF50: Child Health Questionnaire: Parent Form 50
- CHQ-PF50-BP: Child Health Questionnaire: Parent Form 50 - Bodily Pain
- CHQ-PF50-CH: Child Health Questionnaire: Parent Form 50 - Change in Health
- CHQ-PF50-GHP: Child Health Questionnaire: Parent Form 50 - General Health Perceptions
- CHQ-PF50-PF: Child Health Questionnaire: Parent Form 50 - Physical Functioning
- CHQ-PF50-RP: Child Health Questionnaire: Parent Form 50 - Role Physical
- CHQ-RP: Child Health Questionnaire - Role Physical
- CIDI-v2.1: Composite International Diagnostic Interview - Core version 2.1
- CIDI-v2.1-SDD: Composite International Diagnostic Interview - Core version 2.1-Somatoform and dissociative (conversion) disorders
- CIS-R: Clinical Interview Schedule – Revised
- CIS-R-F: Clinical Interview Schedule – Revised: Fatigue section
- CIS-R-WPH: Clinical Interview Schedule – Revised: Worry about Physical Health section
- CRISIS: CoRonavIruS Health Impact Survey
- CRISIS-BG: CoRonavIruS Health Impact Survey - Background
- CRISIS-HE: CoRonavIruS Health Impact Survey - COVID-19 Health/Exposure status
- CTS: Conflict Tactics Scale
- CTS-I: Conflict Tactics Scale - Injury
- DAWBA (2-4): Development and Well-Being Assessment (2-4)
- DAWBA (2-4)-ED: Development and Well-Being Assessment (2-4)-Elimination difficulties
- DISC-IV: Diagnostic Interview Schedule for Children: Version IV
- DISC-IV-MiD: Diagnostic Interview Schedule for Children: Version IV - Module B, Miscellaneous Disorders
- DISS: Discretized Analog Disability Scale
- ELVS-CMHC: ELVS devised - Chronic or Major Health Condition
- ELVS-DD: ELVS devised - Developmental Diagnoses measure
- EQ-5D-3L: EuroQol 5 Dimensions (3 level version)
- EQ-5D-3L-M: EuroQol 5 Dimensions (3 level version) - Mobility
- EQ-5D-3L-PD: EuroQol 5 Dimensions (3 level version) - Pain/Discomfort
- EQ-5D-3L-SC: EuroQol 5 Dimensions (3 level version) - Self-Care
- EQ-5D-3L-UA: EuroQol 5 Dimensions (3 level version) - Usual Activities
- EQ-5D-5L: EuroQol 5 Dimensions
- EQ-5D-5L-M: EuroQol 5 Dimensions - Mobility
- EQ-5D-5L-PD: EuroQol 5 Dimensions - Pain/Discomfort
- EQ-5D-5L-SC: EuroQol 5 Dimensions - Self-Care
- EQ-5D-5L-UA: EuroQol 5 Dimensions - Usual Activities
- FAIM: The Food Allergy Independent Measure
- FAQLQ-CF: Food Allergy Quality of Life Questionnaire: Child Form
- FAQLQ-CF-RAE: Food Allergy Quality of Life Questionnaire: Child Form - Risk of Accidental Exposure
- FPS: Family Psychosocial Screening Questionnaire
- FPS-CH: Family Psychosocial Screening Questionnaire - Child Health
- FPS-FHH: Family Psychosocial Screening Questionnaire - Family Health Habits
- FrACT: Freiburg Visual Acuity and Contrast Test
- GenV-HC: GenV devised - Health Conditions Item Set
- GenV-SF: GenV devised - Sleep and Fatigue Item Set
- GHQ: General Health Questionnaire
- GHQ-I: General Health Questionnaire - Insomnia and anergia
- GHSQ: General Help-Seeking Questionnaire
- HILDA-CP-C: HILDA devised - Continuing Person Questionnaire measure, Carers section
- HSA: Health Socialization Agents
- HSA-FA: Health Socialization Agents - Family risky health behaviors
- HSA-FR: Health Socialization Agents - Friends' risky health behaviors
- HSA-HS: Health Socialization Agents - Self-reported health status
- I2C-MH: Infant2Child devised - Medical Health itemset
- ICDAS-II: International Caries Detection and Assessment System II
- I-GERQ-R: Infant Gastroesophageal Reflux Questionnaire - Revised
- ITSP: Infant/Toddler Sensory Profile
- ITSP-AP: Infant/Toddler Sensory Profile - Auditory Processing
- ITSP-GP: Infant/Toddler Sensory Profile - General Processing
- ITSP-OSP: Infant/Toddler Sensory Profile - Oral Sensory Processing
- ITSP-TP: Infant/Toddler Sensory Profile - Tactile Processing
- ITSP-VesP: Infant/Toddler Sensory Profile - Vestibular Processing
- ITSP-VisP: Infant/Toddler Sensory Profile - Visual Processing
- KDC: Kindergarten Development Check
- KDC-H: Kindergarten Development Check - Health and Wellbeing
- LSAC-CH: LSAC devised - Child Health Item set
- LSAC-PHD: LSAC devised - Physical Health and Diet Item set
- MARCA: Multimedia Activity Recall for Children and Adolescents
- MDI-AST: Middle Years Development Instrument - Use of after-school time
- MDI-PHW: Middle Years Development Instrument - Physical health and well-being
- MIHD: Monthly Infant Health Diary
- NEPSY: A Developmental NEuroPSYchological Assessment
- NEPSY-S: A Developmental NEuroPSYchological Assessment - Sensorimotor subscale
- OTI: Opiate Treatment Index
- OTI-VI: Opiate Treatment Index: Section VI - Health
- OTI-VII: Opiate Treatment Index: Section VII - Psychological Adjustment
- PedsQL 2.0-FIM: Pediatric Quality of Life Inventory – 2.0 - Family Impact Module
- PedsQL 2.0-FIM-Co: Pediatric Quality of Life Inventory – 2.0 - Family Impact Module - Communication subscale
- PedsQL 2.0-FIM-DA: Pediatric Quality of Life Inventory – 2.0 - Family Impact Module - Daily Activities subscale
- PedsQL 2.0-FIM-PF: Pediatric Quality of Life Inventory – 2.0 - Family Impact Module - Physical Functioning subscale
- PedsQL 3.0-Can: Pediatric Quality of Life Inventory – Cancer Module
- PedsQL 3.0-Can-C: Pediatric Quality of Life Inventory – Cancer Module - Communication
- PedsQL 3.0-Can-N: Pediatric Quality of Life Inventory – Cancer Module - Nausea subscale
- PedsQL 3.0-Can-P: Pediatric Quality of Life Inventory – Cancer Module - Pain and Hurt subscale
- PedsQL 3.0-Can-W: Pediatric Quality of Life Inventory – Cancer Module - Worry subscale
- PedsQL 3.0-Car: Pediatric Quality of Life Inventory – Cardiac Module
- PedsQL 3.0-Car-C: Pediatric Quality of Life Inventory – Cardiac Module - Communication
- PedsQL 3.0-GSM: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module
- PedsQL 3.0-GSM-BP: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Blood in Poop
- PedsQL 3.0-GSM-C: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Constipation
- PedsQL 3.0-GSMCom: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Communication
- PedsQL 3.0-GSM-D: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Diarrhea
- PedsQL 3.0-GSM-FDL: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Food and Drink Limits
- PedsQL 3.0-GSM-GB: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Gas and Bloating
- PedsQL 3.0-GSM-HBR: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Heart Burn and Reflux
- PedsQL 3.0-GSM-NV: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Nausea and Vomiting
- PedsQL 3.0-GSM-SD: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Stomach Discomfort When Eating
- PedsQL 3.0-GSM-SP: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Stomach Pain and Hurt
- PedsQL 3.0-GSM-TS: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Trouble Swallowing
- PedsQL 3.0-GSM-WAGP: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Worry About Going Poop
- PedsQL 3.0-GSM-WASA: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Module - Worry About Stomach Aches
- PedsQL 3.0-GSS: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales
- PedsQL 3.0-GSS-BP: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Blood in Poop
- PedsQL 3.0-GSS-C: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Constipation
- PedsQL 3.0-GSS-D: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Diarrhea
- PedsQL 3.0-GSS-FDL: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Food and Drink Limits
- PedsQL 3.0-GSS-GB: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Gas and Bloating
- PedsQL 3.0-GSS-HBR: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Heart Burn and Reflux
- PedsQL 3.0-GSS-NV: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Nausea and Vomiting
- PedsQL 3.0-GSS-SD: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Stomach Discomfort When Eating
- PedsQL 3.0-GSS-SP: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Stomach Pain and Hurt
- PedsQL 3.0-GSS-TS: Pediatric Quality of Life Inventory – Gastrointestinal Symptoms Scales - Trouble Swallowing
- PedsQL 3.0-MFS: Pediatric Quality of Life Inventory – Multidimensional Fatigue Scale
- PedsQL 3.0-MFS-G: Pediatric Quality of Life Inventory – Multidimensional Fatigue Scale - General Fatigue subscale
- PedsQL 3.0-NF: Pediatric Quality of Life Inventory – Neurofibromatosis Module
- PedsQL 3.0-NF-Com: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Communication
- PedsQL 3.0-NF-Con: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Constipation
- PedsQL 3.0-NF-D: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Diarrhea
- PedsQL 3.0-NF-P: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Pain
- PedsQL 3.0-NF-PI: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Pain Impact
- PedsQL 3.0-NF-PM: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Pain management
- PedsQL 3.0-NF-SD: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Stomach Discomfort
- PedsQL 3.0-NF-V: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Vision
- PedsQL 3.0-NF-W: Pediatric Quality of Life Inventory – Neurofibromatosis Module - Worry
- PedsQL 3.0-NMM: Pediatric Quality of Life Inventory – Neuromuscular Module
- PedsQL 3.0-NMM-AMND: Pediatric Quality of Life Inventory – Neuromuscular Module - About My Neuromuscular Disease
- PedsQL 3.0-NMM-C: Pediatric Quality of Life Inventory – Neuromuscular Module - Communication
- PedsQL 3.0-PPQ: Pediatric Quality of Life Inventory – Pediatric Pain Questionnaire
- PedsQL 3.0-PPQ-PP: Pediatric Quality of Life Inventory – Pediatric Pain Questionnaire - Present Pain
- PedsQL 3.0-PPQ-WP: Pediatric Quality of Life Inventory – Pediatric Pain Questionnaire - Worst Pain
- PedsQL 4.0 SF15: Pediatric Quality of Life Inventory – 4.0 SF15 Generic Core Scales
- PedsQL 4.0 SF15-PF: Pediatric Quality of Life Inventory – 4.0 SF15 Generic Core Scales - Physical Functioning subscale
- PedsQL 4.0: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales
- PedsQL 4.0-PF: Pediatric Quality of Life Inventory – 4.0 Generic Core Scales - Physical Functioning subscale
- PedsQL-GWB: Pediatric Quality of Life Inventory – General Well-Being Scale
- PedsQL-GWB-GHS: Pediatric Quality of Life Inventory – General Well-Being Scale - General Health subscale
- PedsQL-HSCM: Pediatric Quality of Life Inventory – Healthcare Satisfation Generic Module
- PedsQL-HSCM-C: Pediatric Quality of Life Inventory – Healthcare Satisfation Generic Module - Communication
- PedsQL-IS: Pediatric Quality of Life Inventory – Infant Scales
- PedsQL-IS-PF: Pediatric Quality of Life Inventory – Infant Scales - Physical Functioning subscale
- PedsQL-IS-PS: Pediatric Quality of Life Inventory – Infant Scales - Physical Symptoms subscale
- PMan: Pain Manikin
- pQCT: Peripheral Quantitative Computerised Tomography
- PROMIS-v1.2: Patient Reported Outcomes Measurement and Information System (PROMIS) Scale - v1.2: Global Health
- PROMIS-v1.2-M: Patient Reported Outcomes Measurement and Information System (PROMIS) Scale - v1.2: Global Health - Mental
- PROMIS-v1.2-P: Patient Reported Outcomes Measurement and Information System (PROMIS) Scale - v1.2: Global Health - Physical
- PSQ-18: The Patient Satisfaction Questionnaire: Short Form
- PSQ-18-C: The Patient Satisfaction Questionnaire: Short Form - Communication
- RHQ: The Rand Corporation Health Questionnaire - Health Insurance Study devised
- RITQ: Revised Infant Temperament Questionnaire
- RITQ-T: Revised Infant Temperament Questionnaire - Threshold
- RVEEH: Royal Victorian Eye and Ear Hospital
- SEHQ: School Entrant Health Questionnaire
- SF-12: Short Form 12-item Health Survey
- SF-12-BP: Short Form 12-item Health Survey - Bodily Pain
- SF-12-GH: Short Form 12-item Health Survey - General Health
- SF-12-PF: Short Form 12-item Health Survey - Physical Functioning
- SF-12-RP: Short Form 12-item Health Survey - Role-Physical
- SF-12-V: Short Form 12-item Health Survey - Vitality
- SF-36v2: Short Form 36-item Health Survey: Version 2
- SF-36v2-BP: Short Form 36-item Health Survey: Version 2 - Bodily Pain
- SF-36v2-GH: Short Form 36-item Health Survey: Version 2 - General Health
- SF-36v2-PF: Short Form 36-item Health Survey: Version 2 - Physical Functioning
- SF-36v2-RP: Short Form 36-item Health Survey: Version 2 - Role-Physical
- SF-36v2-VT: Short Form 36-item Health Survey: Version 2 - Vitality
- SMU: Sizing Me Up measure
- SMU-PF: Sizing Me Up measure - Physical Functioning
- SRH: Self-Rated Health Indicator
- SSDP-I: SSDP devised - Injuries Item set
- STU: Sizing Them Up measure
- STU-PF: Sizing Them Up measure - Physical Functioning
- VAHCS-DP: VAHCS devised - Deceased Parent measure
- VAHCS-HHP: VAHCS devised - Health and Health Problems measure
- VAHCS-In: VAHCS devised - Injuries measure
- VBDR: Victorian Birth Defects Register
- VCh-FHC: VicCHILD devised - Family History of Condition Item set
- VCh-HL: VicCHILD devised - Hearing Loss Item set
- VCh-POH: VicCHILD devised - Pregnancy and Obstetric History Item set
- WHOQOL-BREF: World Health Organization Quality of Life: Abbreviated version
- WHOQOL-BREF-PH: World Health Organization Quality of Life: Abbreviated version - Physical Health
- WMH-CIDI: World Health Organization, Composite International Diagnostic Interview: World Mental Health Initiative version
- WMH-CIDI-PC: World Health Organization, Composite International Diagnostic Interview: World Mental Health Initiative version - Physical Comorbidity section
- AQUA: Other health information
- ART-CHART: Other health information
- ART-IYAGS: Other health information
- ATP: Other health information
- ATPG3: Other health information
- Baby Biotics: Other health information
- BIS: Other health information
- CAP and NICAP: Other health information
- CATS: Other health information
- CheckPoint-LSAC: Other health information
- COBRA: Other health information
- COVID Immune: Other health information
- ELVS: Other health information
- GenV: Other health information
- HealthNuts: Other health information
- Infant2Child: Other health information
- IYDS: Other health information
- Memory Maestros: Other health information
- MIS BAIR: Other health information
- MYPS: Other health information
- PETS: Other health information
- right@home: Other health information
- SchoolNuts: Other health information
- Triple B: Other health information
- VAHCS: Other health information
- VicCHILD: Other health information
- VIHCS: Other health information
- VITALITY: Other health information